A few months ago I had my DNA tested for a variety of reasons, mainly to try to find relatives, as my dad was adopted. I uploaded my raw DNA to a site called Promethease, which checks your data for a wide variety of conditions and disorders. It's seems like it's considered extremely accurate when it comes to recessive genetic disorders. According to Promethease, I am not a carrier for SMA type 1 (or any form of SMA). I lost my daughter Sylvia to SMA type 1 almost 10 years ago. I always assumed…See More
The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA. Please visit this link to see the latest list of resources available to the SMA community.