SMAspace

A Spinal Muscular Atrophy (SMA) network provided by Eminnea, Inc.

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Groups

 

Notes

TokBox Video Chat

Hey SMAspace! I want to quickly announce that I have added the ToxBox Video Chat tool, located under Tools/Fun in your menu.  This app will allow you to video chat with users of SMAspace, as well as those outside SMAspace.  Enjoy!

Created by Nate Lee Jan 29, 2010 at 1:10pm. Last updated by Nate Lee Jan 29.

Latest Activity

Shelley Eisenberg is now a member of SMAspace
7 minutes ago
We received our package and no words can express how grateful we are. It brought a tear to our eyes and a smile on our faces. Our sweet angel Scarlette loves the Play Dough. We can't wait for the conference. See you all there! Thank you again!
32 minutes ago
LJ added a discussion
Hello Friends,   Our daughter Abigail has a mark/rash on her knee.  It's red and in the shape of a lollipop.  It almost looks like a Celtic Cross.   It is below the surface, like a bruise or almost like a hickey.  It is relatively smooth to the touc…
46 minutes ago
Barbara Zahn New goal for head shaving: $10,000! Why not make some real money while we're at it? :)
1 hour ago
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2 hours ago
I am so sorry, my heart goes out to you. God bless the day when we see our angels again. I know you miss her so much--I'm so sorry.
3 hours ago
Barbara Zahn Next up: Shearing it off for SMA; Cutting it for a Cure! If I can raise $5,000 by July 9, Lucy's 1st birthday, I will shave my head!
3 hours ago
Families of SMA added a blog post
Everyone at Families of Spinal Muscular Atrophy has been busy assembling the Newly Diagnosed Care Packages, now being sent to all newly diagnosed SMA families in the U.S. www.fsma.org
3 hours ago

Blog Posts

Families of SMA

Newly Diagnosed Care Packages

Posted by Families of SMA on February 8, 2010 at 4:10pm — 1 Comment

Susan McNabb

Emily

Posted by Susan McNabb on February 6, 2010 at 5:16pm — 9 Comments

michelle worrellia

SMA Coalition For A Cure - Get On Board

Posted by michelle worrellia on February 6, 2010 at 9:35am — 3 Comments

michelle worrellia

LOOK!!!!!!!

Posted by michelle worrellia on February 4, 2010 at 11:34pm — 7 Comments

Forum

LJ

Mystery Mark/Rash on Knee?

Started by LJ 49 minutes ago.

Nana Barb

Hip Surgery 4 Replies

Started by Nana Barb. Last reply by Nana Barb 18 hours ago.

Christie Tolson ( Holly's Mom)

Type 1 feedings after age 1? 3 Replies

Started by Christie Tolson ( Holly's Mom). Last reply by Danielle (Karah's Mom) 21 hours ago.

Jennifer (Addy's Mom)

BBG Nasal Aspirators, Foam Tape and Seating 5 Replies

Started by Jennifer (Addy's Mom). Last reply by Jennifer (Addy's Mom) 1 day ago.

Debby St. Onge

Jaeco slings info 4 Replies

Started by Debby St. Onge. Last reply by Victoria Strong 1 day ago.

Julie (Jenica's Mom)

Medical Deductions on your taxes

Started by Julie (Jenica's Mom) 1 day ago.

Catherine Gaynor

Elevator in the home 5 Replies

Started by Catherine Gaynor. Last reply by Shannon Feb 7.

Karen Reilly

MMR shot for Type 1? 1 Reply

Started by Karen Reilly. Last reply by Danielle (Karah's Mom) Feb 6.

Diana Lee

MRSA symptoms 8 Replies

Started by Diana Lee. Last reply by Jennifer Goodson Feb 5.

Meri Phelps

Use of pillows and mattresses in children with type 1 SMA 8 Replies

Started by Meri Phelps. Last reply by Meri Phelps Feb 5.

 
 

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