SMAspace

A Spinal Muscular Atrophy (SMA) network provided by Eminnea, Inc.

Have an idea for SMAspace?? Feel free to provide some feedback. :)

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Birthdays

Birthdays Tomorrow

Groups

SMA Type1 families

146 members
Accute Care Guidelines

2 members

Equipment Closet

88 members
SMA Type III

81 members

SMA Type II

171 members

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Videos

Nora in her waterwaybabies pool

Added by T.J. Gooden (Nora's Dad)
Gwendolyn's First Steps

Added by Bill Strong
A Meet and Greet with Emily Osment

Added by Tina MacIntyre
003

Added by kayla grace

SMA News

smaspace: #SMA Paying for in-home nurses http://bit.ly/2hg2Lb

smaspace: #SMA Drug Candidate For Treating Spinal Muscular Atrophy Identified By ... http://bit.ly/2VHm0T

smaspace: @alexatning thnx for the link. Will revenue frm purchases made bfore registering count twrds payout? still think it was a sneaky addon :/

smaspace: #SMA the acting chairman http://bit.ly/11Thxp

smaspace: @BBY1430 Thanks for helping to raise awareness about #SMA!

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Notes

Nuchal Translucency (NT) study

From: Neda Zadeh, M.D. -- To: Claire Altman Heine Foundation

You are invited to participate in a research study on the possible association between Nuchal Translucency (NT) measurement and fetuses affected with Spinal Muscular Atrophy (SMA). Our goal is to determine whether there is an association between increased NT measurements and SMA. If so, diagnostic testing for SMA may be offered to women with increased NT and no evidence of a chromosome abnormality of the fetus. We are o… Continue

Created by Nate Lee Nov 5, 2009 at 5:58pm. Last updated by Nate Lee Nov 5.

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Latest Activity

Marie (Ava's mama) left a comment for Lizzys Nina/Jeanna

35 minutes ago

Marie (Ava's mama) left a comment for Debby St. Onge

36 minutes ago

Marie (Ava's mama) replied to Marie (Ava's mama)'s discussion '? about TLSO' in the group SMA Type1 families

39 minutes ago

Marie (Ava's mama) replied to Marie (Ava's mama)'s discussion '? about TLSO' in the group SMA Type1 families

40 minutes ago

Marie (Ava's mama) replied to Marie (Ava's mama)'s discussion '? about TLSO' in the group SMA Type1 families

40 minutes ago

MJ & Brenda of B4SMA commented on MJ & Brenda of B4SMA's blog post 'MJ has swine flu too'

Started rotating anti-nausea meds every 3 hrs to help prevent the major spasms...helps at times, not at others. temp is still 99, secretions are flowing now...coming up and also draining from nose to make it worse. She is still holding her own, bu...

1 hour ago