SMAspace

A Spinal Muscular Atrophy (SMA) network provided by Eminnea, Inc.

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Birthdays

Birthdays Today

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Links

SMA Organizations:

SMA Education:

Other Helpful Links:

Groups

MAKE A WISH TRIPS

23 members
Equipment

6 members

SMARD--Anyone? We know…

15 members
Future Children (PGD, Ad…

30 members

SMA Type1 families

188 members

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Videos

Makenna talking to her cartoon friends

Added by Lisa Gaylord
Collin Raye - She's With Me - Official Video

Added by Debby St. Onge
Shira Receiving Beckman Motor Oral Therapy Part 4

Added by Brad (Shira SMA Type 1 4yrs old)
Shira Receiving Beckman Oral Therapy Part 3

Added by Brad (Shira SMA Type 1 4yrs old)

SMA News

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Notes

Pepsi Refresh Project

Hey guys, Stop SMA has been selected to compete in the Pepsi Refresh Project. This could provide $250,000 for SMA research. We are currently in 4th place which is terrific. Please vote daily, you can vote one time a day. Yes, you get 10 new votes everyday but can only use 1

… Continue

Created by Nate Lee Mar 1, 2010 at 1:27pm. Last updated by Nate Lee Mar 9.

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Latest Activity

Gabriella Rose Lisacchi commented on Diana Lee's group 'MAKE A WISH TRIPS'

i would love to bring gabbie to disney...she is going to be 1 on april 21st and wanted to plan a trip even if its for her to see all the characters she loves and the views... but dont have proper transport....or the funds due to our medical ins we h…

1 hour ago

Gabriella Rose Lisacchi and Deirdre Medina's Mom joined Diana Lee's group

MAKE A WISH TRIPS

Please share all your MAW stories here, since many families have so many questions... The good, the bad and the ugly! Hopefully,not too ugly : ) Any tips for future wish families would be much appreciated!

1 hour ago

Gabriella Rose Lisacchi commented on Barbara Zahn's blog post 'What is appropriate for a 8 month type 1?'

hey barb thats great shes moving better gabbie had done that also and our dr said that ...not sure if ture..i GUESS? what happens is that cells grow and give strength and then they die off not too sure...BUT since she is doing so great keep up on PT…

1 hour ago

Susan Jones and lidia sherwwood age 23 are now friends

1 hour ago

Gabriella Rose Lisacchi we are going to get gabbies easter portrate done and 1 yr pics done going to be so cool and beatuiful got some real nice dresses YAY

2 hours ago

Gabriella Rose Lisacchi commented on Barbara Zahn's photo 'So much hair now!'

love the hair

2 hours ago

Gabriella Rose Lisacchi commented on Barbara Zahn's photo 'Big girl!'

so adorable

2 hours ago

Gabriella Rose Lisacchi commented on Lisa Gaylord's video 'Makenna talking to her cartoon friends'

way too cute thanks for posting she is so happy

2 hours ago

Rebekka Mastin (Ollie's Mama) left a comment for leann nance

2 hours ago

Jami Whaley and Gina Ruocco joined SMAspace

3 hours ago

Karen Jones and Emily Saksi joined Susan Jones's group

Equipment

A resource for those of us searching for info and experiences related to equipment...such as machines and bi-pap masks, car seats, switches, therapy items, adaptive seating, strollers, powerchairs etc..

3 hours ago