Latest Activity

wen posted a status
Sep 26, 2016
wen posted a status
"Biogen Completes Rolling Submission of New Drug Application to FDA for Nusinersen as a Treatment for SMA http://tinyurl.com/jqrvctr"
Sep 26, 2016
tj bennett posted a status
Sep 23, 2016
tj bennett posted a status
"AveXis rises as Jefferies finds walking baby believed to be patienthttp://thefly.com/landingPageNews.php?id=2432512"
Sep 20, 2016
tj bennett posted a status
"READ.…"
Sep 19, 2016
tj bennett posted a status
"An update on Nusinersen EAP provided by investigators in London https://twitter.com/SMAresearch"
Sep 16, 2016
Bree Langford is now a member of SMAspace
Sep 16, 2016
tj bennett posted a status
Sep 15, 2016
Misty dobson posted a status
Sep 9, 2016
tj bennett posted a status
"MDACEO $550,000Totalsalaries$60 millionhttp://www.showbiz411.com/2016/09/04/mda-post-jerry-lewis-losing-money-every-year-but-ceo-gets-550000"
Sep 5, 2016
tj bennett posted a status
Sep 2, 2016
tj bennett posted a status
"DuchenneLessonshttp://www.xconomy.com/national/2016/08/26/duchenne-lessons-advocates-for-rare-spinal-disease-have-eyes-on-fda/?"
Aug 26, 2016
tj bennett posted a status
"new hope for SMA.…"
Aug 17, 2016
tj bennett posted a status
"EAPSMA1https://www.facebook.com/theFASTmovement/photos/a.1502369826749829.1073741829.1501908410129304/1667365380250272/?type=3&theater"
Aug 13, 2016
tj bennett posted a status
Aug 11, 2016
tj bennett posted a status
"Read...Heart of Bureaucratic Darkness https://www.facebook.com/gm604forals/posts/1810923665795640"
Aug 11, 2016
tj bennett posted a status
"Duchenne advocates’ wait for an FDA decision nears the six-month mark http://tinyurl.com/jfulzcx"
Aug 5, 2016
tj bennett posted a status
"Now let's see how long it takes them to start helping everyone."
Aug 1, 2016
tj bennett posted a status
"$IONS SMA infant drug stopped early for efficacy!!https://twitter.com/RNAiAnalyst/status/760080607397412864"
Aug 1, 2016
Jeffery Hoffman is now a member of SMAspace
Jul 31, 2016

SMA Links

The list was getting too long -- b/c there are SO MANY GREAT ORGANIZATIONS raising awareness and funding to cure SMA.  Please visit this link to see the latest list of resources available to the SMA community.

 
 
 

Members

Birthdays

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All

Badge

Loading…

Where are we?

Locations of visitors to this page

© 2017   Created by Nate Lee.   Powered by

Badges  |  Report an Issue  |  Terms of Service